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Holistic Support Programs for Neurofibromatosis

Examples

A project to develop holistic support programs for Neurofibromatosis patients, addressing both medical and psychosocial needs.

Description

Neurofibromatosis patients need comprehensive support. This project aims to provide holistic support programs. The Neurofibromatosis Foundation supports patients with Neurofibromatosis. Dr. Charles Carter, a specialist in holistic care, leads this project. 

Objectives

Develop holistic support programs for Neurofibromatosis patients
  • Identify patient needs
  • Develop support programs
  • Implement and evaluate programs

Project scope

  • Needs assessment
  • Program development
  • Program implementation
  • Long-term program maintenance

Method

  • Research Methods:Surveys and focus groups
  • Patient Engagement:Involvement in program planning
  • Data Collection & Analysis:Survey analysis and feedback review

Metrics

Positive feedback from program participants
  • Participation rates
  • Program satisfaction scores

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